So a Thought Is Born.
This has been bouncing around my head for a while. Wondering, pondering, thinking, conceiving, discarding, reviving…
Today a thought formed in solid outlines…
Fragile X research and Autism research are two related causes that are close to my heart. As I have mentioned before, my older son Danny has Fragile X Syndrome. I won’t bore you with the details but the tie to Autism research is that Fragile X is the number one known genetic cause of Autism.
Research in to treatment for one will benefit the other. This is why I take part in the Ride For Autism each year here in New Jersey.
A couple of weeks ago I decided to put together a team to ride in the Ride For Autism. I am calling it Danny’s Team in honor of my son. I hope that we can put together 10-15 riders or more to take part and raise donations for the Ride For Autism charity. I haven’t set a financial goal yet but any amount is helpful.
While all this is good, ideas for something bigger have been bouncing around my head.
Today the ideas formed together and I know what I want to do.
The Grand THING.
I am going to put together a team of 4 to 6 riders and we are going to ride from Northern New Jersey to Miami, Florida. 1400 miles. The plan will be to get sponsors and ride 75-125 miles per day. The goal is to raise money for Fragile X research and raise awareness of the syndrome.
Why Miami? Why not? Looking at the map it just seems to make sense. If I can get ten companies to pledge just $1.00 a mile we would raise $14,000 dollars. That is just a quick blush and thought. As I said, the thought was born today after weeks of incubation. The plans will take much longer to pull together.
I have no idea how to do this but I have resources who will help and I know we can make it come together and make it happen.
Wish me luck as I pull this together.
There are few things that get my passion t rise the way the quest to find effective treatments for Fragile X does.
I hope you will join me in spirit and offer encouraging words as I work towards making this happen, perhaps as early as October of 2014.